Wednesday, September 28, 2022

How To Explain Rheumatoid Arthritis To Family

Are Rheumatoid Arthritis Patients Immunocompromised What Does That Even Mean

How Rheumatoid Arthritis Affects Family, Friendships and Fatigue

“Immunocompromised” is a scary word, and a complicated word. It is also very misunderstood. I have heard people who have rheumatoid arthritis or other autoimmune diseases say they have no immune system.” That is an inaccurate statement. In fact, immunocompromised is defined as having a weakened immune system. People who are immunocompromised have a reduced ability to fight off infections or certain other conditions. It is also said that immunocompromised patients have an increased risk of developing an infection.

With RA, the disease state itself is associated with being immunocompromised. With autoimmunity, the body attacks healthy immune cells, thus lowering immunity. Also, the treatments for RA are designed to dampen down the overactive immune state of RA. But, remember, lower immunity is not no immunity. Think of it as having lower defenses against infections.

You may also hear about the consequence of being immunocompromised as it relates to vaccine efficacy. Potentially, immunocompromised patients may not achieve the full effect from vaccinations.

Regarding the terminology, the words “immunocompromised” and “immunosuppressed” are often used interchangeably.

I Can Still Lead A Normal Life

With earlier diagnosis and more effective, tailored treatments available, it is now possible for more people with RA to lead a more normal life.

This makes it especially important for people living with RA to have regular and open conversations with their doctor to discuss personal goals and their options.

References

  • Symmons D, et al. The global burden of rheumatoid arthritis in the year 2000. Available at . Last accessed September 2016.
  • Gabriel SE and Michaud K. Epidemiological studies in incidence, prevalence, mortality, and comorbidity of the rheumatic diseases. Arthritis Res Ther. 2009 11:229.
  • Arthritis Foundation. More than just joints: how rheumatoid arthritis affects the rest of your body. Available at: . Last accessed September 2016.
  • NHS Choices. Rheumatoid Arthritis symptoms. Available at: . Last accessed September 2016].
  • Arthritis Foundation. Rheumatoid Arthritis and Depression. Available at: . Last accessed September 2016.
  • Talking About Ra At Work

    You need to take several things into consideration when deciding if youll tell your manager and co-workers about your RA. You arent required to talk about a medical condition with anyone, and if RA symptoms dont affect your work, you might choose not to bring it up at all. However, if you need time off for appointments or special accommodations at your workplace, its probably a good idea to let certain people know you have RA.

    Depending on how your company is structured, you could start with your immediate supervisor or talk with someone in your human resources department. Whoever you talk to, make it clear why youre telling them. You might say, I wanted to let you know I have rheumatoid arthritis. That means I sometimes need to stand at my desk to take pressure off my joints.

    When it comes to your workplace rights in relation to RA, you might find the Job Accommodation Network website helpful: Its a federal clearinghouse of information on the Americans with Disabilities Act.

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    Impact Of The Diagnosis Of Rheumatoid Arthritis On Family & Others

    Rheumatoid Arthritis can be diagnosed at any age so the impact on the family can vary greatly. Sometimes a couple went to the appointment together and heard the diagnosis first hand. Most of the people we talked to had informed their close relatives soon after they returned home. Family members and friends were often not sure how to react since they knew little about rheumatoid arthritis. Few knew the difference between RA and the more common osteo-arthritis . Some relatives and friends, not in everyday contact with the person, did not understand the full effects of the disease on the person and thought it might be only short-term.

    Following Up With The Pharmaceutical Medication Bomb

    How to Fight Rheumatoid Arthritis

    We know the side effects and risks of the medications to treat rheumatoid arthritis. I am currently on a monthly infusion that could perforate my bowel! I wish pharmaceutical drug commercials did more disease awareness when advertising drugs for specific diseases. I wish they showed just how bad the disease can get.

    Particularly to treat rheumatoid arthritis, there is a long list of different types of medications and even longer list of side effects that come with those meds. One of the main drugs to treat RA is methotrexate, which is a very small dose of chemotherapy. While small, it still comes with side effects like hair loss, increased depression, fatigue, vomiting, diarrhea, an even harder time fighting off infections and monthly testing of my liver. The medications are often as bad as the illness, but oh to not become even more disabled before I am 40 because of my progressive autoimmune disease

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    Fatigue Is As Daunting As Rheumatoid Arthritis Pain

    Most people are aware that RA is a chronic pain condition. Managing the pain and learning to live with pain become the focus after being diagnosed with RA. Most people dont realize that, with RA, fatigue is as big of a problem as pain. Research published in the journal RMD Open suggests that fatigue in RA is a persistent problem and an unmet need. Even with improved treatment strategies, fatigue persists.

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    Rheumatoid Arthritis Is Not Solely A Joint Disease It Is A Systemic Disease

    With rheumatoid arthritis the organs of the body, such as the heart, lungs, and eyes, may also be affected. Because arthritis is part of the name, it is misleading, confusing, and somewhat suggestive that RA only affects the joints. Not so.

    While there is symmetrical peripheral polyarthritis with RA, the pulmonary manifestations, cardiovascular manifestations, neurological manifestations, and potential complications, such as infection and glucocorticoid-induced osteoporosis, are significant aspects of the disease which must be managed. According to an article published in the June 2020 issue of the Journal of Clinical Medicine, systemic involvement occurs is about 40 percent of RA patients.

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    What Is Rheumatoid Arthritis

    Rheumatoid arthritis, or RA, is an autoimmune and inflammatory disease, which means that your immune system attacks healthy cells in your body by mistake, causing inflammation in the affected parts of the body.

    RA mainly attacks the joints, usually many joints at once. RA commonly affects joints in the hands, wrists, and knees. In a joint with RA, the lining of the joint becomes inflamed, causing damage to joint tissue. This tissue damage can cause long-lasting or chronic pain, unsteadiness , and deformity .

    RA can also affect other tissues throughout the body and cause problems in organs such as the lungs, heart, and eyes.

    What If You Dont Respond To The Standard Disease Modifying Drugs

    Family Planning with Rheumatoid Arthritis

    For some people, maybe 10% to 20% of people with RA, the disease is more aggressive and more difficult to get under swift control. But a range of injectablebiologic drugs have revolutionised treatment for people who dont respond to the standard DMARDs. Biologic drugs are a more complex form of DMARD. More recently, another class of drugs called JAK inhibitors have become available which are taken orally in the form of tablets which are as similarly highly effective as biologic drugs.

    The NHS follows guidance set out by the National Institute for Health and Care Excellence about when biologics or JAK inhibitors can be prescribed. They are used after standard DMARDs havent worked sufficiently well, so theyre not usually prescribed for people who are newly diagnosed. They are also used if someone does not respond sufficiently well to the first biologic or JAK inhibitor given after standard DMARDs. In many cases, biologic drugs and JAK inhibitors are used with concomitant methotrexate therapy as an anchor drug, as mentioned earlier, as this boosts the overall benefits.

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    She Prefers Not To Tell Acquaintances Because In Her Experience They React In Disbelief And It’s

    A few people who had been diagnosed relatively young or in their 20’s, said that they did not tell others. Sometimes this meant that they avoided seeing relatives or going out socially, for fear of being treated differently or excluded from activities. One woman told her family but kept it secret from her friends. She later realised they just wanted to help. Another considers herself lucky because friends and relatives have rallied around after her diagnosis.

    Your Ra Healthcare Team

    After youve been diagnosed with RA, a team co-ordinates your treatment along with yourconsultant rheumatologist. This combination of professionals is the key to effective treatment. The exact team will vary, depending on where you live and your needs, but you should expect to see some of the following people as part of your rheumatology care:

    Arheumatology specialist nursecan help you learn about RA and your treatments, how to look after your joints, and how to have a healthy lifestyle. The nurse will be your first point of contact at the hospital.

    Aphysiotherapistand/oroccupational therapistcan teach you how best to protect your joints and the best exercises to keep them moving. He or she may advise splints for severely affected joints. Evidence shows that staying active and exercising regularly is beneficial.

    Generally, theGPworks together with others in the practice to provide support and reassurance to patients with long-term conditions, advising about self management and lifestyle issues as well as prescribing the recommended drugs, monitoring your blood tests and advising about pain management. TheGPsinvolvement in your care may vary from practice to practice.

    If your feet are significantly affected, apodiatrist is an essential member of the team. He or she can advise you about looking after your feet and footwear and provide appropriate insoles for your shoes.

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    How Does Rheumatoid Arthritis Affect Relationships And Sexuality

    Rheumatoid arthritis influences your everyday life and work, but it also affects your relationship and sexuality. The disease may have an impact on many different parts of a relationship, such as the roles you have, the division of chores in the household, mutual plans and what you can do together in your spare time.. Not going to parties or on trips together, or not participating in sports that you both enjoy, may lead to disappointment and make it harder to develop a feeling of togetherness.

    Sometimes people with rheumatoid arthritis have the feeling that their partner doesn’t show enough understanding for the situation they are in. Friends and family also need to first learn about what effects the disease has and it may be hard for them to deal with too. It changes the lives of both partners. It’s not always easy to see the other in pain, or to deal with more limitations and take on more responsibilities. It’s important not to blame yourself or anyone else, because the disease and its effects are no one’s “fault.”

    Some couples don’t speak enough about their problems. But honest talks about stress, needs, worries and fears can be helpful to understand what the other person is going through. It might be better to come up with ideas together about changing habits, like planning fun activities spontaneously rather than far in advance, taking more breaks to rest when on trips, and reconsidering who takes care of which chores.

    Encourage Friends And Family Members With Ra To Sleep Well

    Cmc arthritis.How to explain rheumatoid arthritis to ...

    You may be a night owl or keep erratic sleep hours. But when someone is living with rheumatoid arthritis, it is crucial that they get sufficient and regular sleep. Regular sleep helps reduce pain and fatigue in someone with RA. So dont call them late at night or ask them to join you at midnight parties. And dont call early in the morning if you think they may be sleeping.

    You can help your friend or loved one develop proper sleep habits. This includes going to bed and getting up at the same time each day keeping the room cool and comfortable and avoiding caffeine and bright computer or cellphone screens before bed. Also, if your loved one is taking painkillers, make sure they take them at night to allow for recuperative sleep.

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    Rheumatoid Factor And Anti

    Specific blood tests can help to diagnosis rheumatoid arthritis, but are not accurate in every person. About half of all people with rheumatoid arthritis have a positive rheumatoid factor present in their blood when the disease starts, but about one in every 20 people without rheumatoid arthritis also tests positive for this.

    Another antibody test known as anti-CCP is also available. People who test positive for anti-CCP are very likely to develop rheumatoid arthritis, but not everybody found to have rheumatoid arthritis has this antibody.

    Those who test positive for both rheumatoid factor and anti-CCP may be more likely to have severe rheumatoid arthritis requiring higher levels of treatment.

    Symptoms Affecting The Joints

    Rheumatoid arthritis is primarily a condition that affects the joints. It can cause problems in any joint in the body, although the small joints in the hands and feet are often the first to be affected.

    Rheumatoid arthritis typically affects the joints symmetrically , but this is not always the case.

    The main symptoms of rheumatoid arthritis affecting the joints are outlined below.

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    When To Seek Medical Advice

    You should see your GP if you think you have symptoms of rheumatoid arthritis, so your GP can try to identify the underlying cause.

    Diagnosing rheumatoid arthritis quickly is important because early treatment can help stop the condition getting worse and reduce the risk of further problems such as joint damage.

    Read more about diagnosing rheumatoid arthritis.

    What Can Help You Continue To Work

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    Work is an important part of life for many people, not only because they need to earn money. If you’re satisfied with your working environment, a job often helps people feel like they are doing something useful and is good for their self-confidence. In addition to earning your own money, being around other people at work is often very important too.

    Continuing to do their job can help also help distract people from their symptoms and help show them that not everything in their life has to revolve around their disease. Some people even report that their job has become more important to them since developing rheumatoid arthritis, and that they’d rather do less in their free time than give up their work.

    If the disease does affect your work, it may be helpful to talk with your boss or coworkers. Your employer may be able to help in some way, for instance by making changes to your workplace or adjusting your break times or deadlines for certain tasks. If changes have to made at your workplace, your state pension insurance may cover the costs in some circumstances.

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    Work Disability Is Common With Rheumatoid Arthritis

    According to the CDC, RA can make work difficult. In fact, adults with RA are less likely to be employed than those who do not have RA, research shows. As the disease progresses and worsens, many people with RA find they cannot work at the level they once did. Work loss among people with RA is highest among people whose jobs are physically demanding, and less so among those with jobs that are less physical or where they have influence over the job pace and job activities.

    While some studies suggest work disability rates with RA are somewhat variable, prospective studies show that the rate is about 30 to 40 percent five years after diagnosis, according to research published in the journal Annals of the Rheumatic Diseases.

    It has been theorized that better treatment options, such as biologic drugs, would have a positive impact on RA and lower work disability rates. While there may be improvement in individual cases, research suggests that overall work disability remains a problem with RA.

    It can be difficult to determine when it is the right time to stop working, but you must consider your physical limitations and the demands of your current job, as well as the demands of any type of work. Social Security Disability defines disability for their purposes of determination as the inability to engage in any substantial gainful activity by reason of any medically determinable physical or mental impairment that has lasted or is expected to last for 12 months or result in death.

    Tells How It Affected Her Daughter Age 9 And How She Explained It Wasn’t Life Threatening

    One woman told her relatives and friends but tried to hide the full symptoms and problems it was causing and ‘put on an act’ until she got behind her own front door. Not until family members spent some time with her did they realise what impact the disease was having. Another young woman appreciated the encouragement and support from others that helped her get over her own shock at the diagnosis.

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    Exercise And Physical Therapy

    Results of randomized controlled trials support physical exercise to improve quality of life and muscle strength in patients with RA.32,33 Exercise training programs have not been shown to have deleterious effects on RA disease activity, pain scores, or radiographic joint damage.34 Tai chi has been shown to improve ankle range of motion in persons with RA, although randomized trials are limited.35 Randomized controlled trials of Iyengar yoga in young adults with RA are underway.36

    Ra Is Not Osteoarthritis

    How Common Is Seronegative Rheumatoid Arthritis

    Rheumatoid arthritis is an autoimmune disorder. My immune system is confused and does not work correctly in my body. RA causes joint erosion and deformity. RA not only attacks my joints but also can attack various body systems and organs. The disease is very unpredictable when it affects a person.

    Please do not confuse rheumatoid arthritis with osteoarthritis. They both are very debilitating and very different diseases. RA is not a result of the aging process. It is not just a joint issue, but an issue with my immune system. This disease affects my joints, my body systems, and my organs.

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